The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients appears to be a demarcating point in the history of this illness.
The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.
Amid concerns that the blood supply was contaminated the NIH officials announced they'd already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases - XAND (X Associated Neuroimmune Disease).
Questions were quickly raised concerning prevalence, transmission, testing, treatment, etc. Much is still unknown about this new finding with news coming in almost daily. Please post comments/suggestions to me using the contact box on the above left top of the website pages or at phoenixcfs@gmail.com.
Hot Items! - Be sure to check out the resource section for information on Dr. Peterson's live talk on XMRV at the CFSAC meeting tomorrow. The two videos are particularly helpful and don't miss Hillary Johnson's Op Ed piece in the New York Times called "A case of chronic denial"
These are exciting times indeed.
XMRV Information Center
Game Changer - XMRV prevalence, diagnosis, history, etc.
Hope and Caution
Treatment - Test Kits Available 10/26
Transmission
Proving XMRV - the Next Steps
The Puppet Master?
Resource Center - Dr. Peterson speaking in a live webcast on XMRV on Oct 29th
Discussion Center
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